Our story of having a baby with posterior urethral valve syndrome.
A small part is the journal of the diagnosis and fetal surgery, and my time in the Perinatal Specialty Unit waiting for his arrival.
Mostly about his journey, his fight, and his strength in dealing with the struggles and hurdles his condition is throwing at him.
Thursday, July 21, 2016
July 21, 2016
We don't really post these pictures, but this is Zeke's reality. The vascath line in his neck bleeds fairly frequently and today was no exception. The line got pulled out partially and the nurses had a hard time getting the bleeding to stop. They got it stopped though and the surgeons came in and replaced the vascath. Zeke lost a good amount of blood and he's now getting 60 CCs transfused. They got him back on dialysis with no issue and he's stable and sleeping now.